Topic analysis

Welsh mother campaigns for increased brain tumour research funding after 11-year-old daughter dies of DIPG

In April 2025, 11-year-old Alicia-Adele Axiak of Caerphilly, Wales died 13 days after being diagnosed with inoperable, incurable diffuse midline glioma (DIPG), an aggressive brain tumour, following initial symptoms of a numb arm that progressed to facial and leg numbness. Her mother Amanda Axiak has since founded the campaigning group Alicia-Adele's Angels, raising roughly £7,500 for Brain Tumour Research to push for higher funding for brain tumour research, which receives only 1% of UK cancer research spending despite being the leading cause of cancer death for people under 40 in Wales.